Understands the basics of CF: what it is, how it impacts the body, etc.

Understands the importance of sleep on overall health

Understands the importance of sports, exercise, salt intake, and healthy activities

Understands importance of infection control and ways to manage the spread of germs/infection

Understands the roles and responsibilities of CF care team members

Understands the key symptoms that might trigger exacerbations or a decline in health

Knows names of medications, understands what they do, and learns about new treatments as they are introduced

Understands BMI percentile, FEV₁ scores, key aspects of CF screening, and basic tests

Understands the proper nutrition and diet plan for a person with CF and impact on lung/overall health

Understands how equipment works and how to get replacement equipment

Understands rights in school and the workplace

Understands other possible health issues linked to CF (CF-related diabetes, liver disease, sinus issues, etc.)

Understands impact of CF on body/sexual development

Understands the impact of CF on mental health (anxiety/depression)

Understands how lifestyle choices impact long-term health (drinking, drugs, smoking, transplant, relationships)

Understands CF-related insurance, patient assistance programs, medication, and financial management

Leads all aspects of clinic visit—asks/answers questions about health status, treatment changes, insurance, etc.

Proactively identifies and reports changes in health/symptoms and alerts parent or care team

Keeps track of FEV₁ and BMI and implements recommended nutrition/treatment changes, as needed

Monitors and maintains appropriate sleep schedule

Creates and maintains proper diet and nutrition plan

Prepares for hospital visits (packing, alerting school/work, etc.)

Coordinates care with healthcare providers outside the CF center (primary care, psychologist, OB/GYN)

Person with CF is open to and ready for transfer to adult center

Schedules appointments and tracks all doctor’s appointments/clinic visits

Manages all insurance and financial aspects of CF care (ordering new treatments, coordinating refills, co-pays, etc.)

Arranges transportation to all doctor’s appointments/clinic visits

Sets up all equipment and treatments

Remembers to take and carry pills and enzymes

Remembers and takes medicines and treatments as prescribed by doctor

Cleans and disinfects equipment

Sorts and tracks medications, identifies need for refills, and informs care team/pharmacy if running low

Stores medication properly

Has a plan or system for taking medicines and treatments when on the road (on vacation, at school, at work)

Pictures and openly talks about a future for the person with CF

Able to identify warning signs and apply strategies for managing anxiety and depression

Maintains and monitors exercise plan

Educates school, family, friends, and coaches about CF

Able to speak up/advocate for the person with CF in the medical system, school, or other social settings

Makes healthy lifestyle choices (drinking, drugs, infection control, etc.)

Understands the importance of—and utilizes—a support system of peers with CF

Understands the basics of CF: what it is, how it impacts the body, etc.

Understands the importance of sleep on overall health

Understands the importance of sports, exercise, salt intake, and healthy activities

Understands importance of infection control and ways to manage the spread of germs/infection

Understands the roles and responsibilities of CF care team members

Understands the key symptoms that might trigger exacerbations or a decline in health

Knows names of medications, understands what they do, and learns about new treatments as they are introduced

Understands BMI percentile, FEV₁ scores, key aspects of CF screening, and basic tests

Understands the proper nutrition and diet plan for a person with CF and impact on lung/overall health

Understands how equipment works and how to get replacement equipment

Understands rights in school and the workplace

Understands other possible health issues linked to CF (CF-related diabetes, liver disease, sinus issues, etc.)

Understands impact of CF on body/sexual development

Understands the impact of CF on mental health (anxiety/depression)

Understands how lifestyle choices impact long-term health (drinking, drugs, smoking, transplant, relationships)

Understands CF-related insurance, patient assistance programs, medication, and financial management

Leads all aspects of clinic visit—asks/answers questions about health status, treatment changes, insurance, etc.

Proactively identifies and reports changes in health/symptoms and alerts parent or care team

Keeps track of FEV₁ and BMI and implements recommended nutrition/treatment changes, as needed

Monitors and maintains appropriate sleep schedule

Creates and maintains proper diet and nutrition plan

Prepares for hospital visits (packing, alerting school/work, etc.)

Coordinates care with healthcare providers outside the CF center (primary care, psychologist, OB/GYN)

Person with CF is open to and ready for transfer to adult center

Schedules appointments and tracks all doctor’s appointments/clinic visits

Manages all insurance and financial aspects of CF care (ordering new treatments, coordinating refills, co-pays, etc.)

Arranges transportation to all doctor’s appointments/clinic visits

Sets up all equipment and treatments

Remembers to take and carry pills and enzymes

Remembers and takes medicines and treatments as prescribed by doctor

Cleans and disinfects equipment

Sorts and tracks medications, identifies need for refills, and informs care team/pharmacy if running low

Stores medication properly

Has a plan or system for taking medicines and treatments when on the road (on vacation, at school, at work)

Pictures and openly talks about a future for the person with CF

Able to identify warning signs and apply strategies for managing anxiety and depression

Maintains and monitors exercise plan

Educates school, family, friends, and coaches about CF

Able to speak up/advocate for the person with CF in the medical system, school, or other social settings

Makes healthy lifestyle choices (drinking, drugs, infection control, etc.)

Understands the importance of—and utilizes—a support system of peers with CF

Understands the basics of CF: what it is, how it impacts the body, etc.

Understands the importance of sleep on overall health

Understands the importance of sports, exercise, salt intake, and healthy activities

Understands importance of infection control and ways to manage the spread of germs/infection

Understands the roles and responsibilities of CF care team members

Understands the key symptoms that might trigger exacerbations or a decline in health

Knows names of medications, understands what they do, and learns about new treatments as they are introduced

Understands BMI percentile, FEV₁ scores, key aspects of CF screening, and basic tests

Understands the proper nutrition and diet plan for a person with CF and impact on lung/overall health

Understands how equipment works and how to get replacement equipment

Understands rights in school and the workplace

Understands other possible health issues linked to CF (CF-related diabetes, liver disease, sinus issues, etc.)

Understands impact of CF on body/sexual development

Understands the impact of CF on mental health (anxiety/depression)

Understands how lifestyle choices impact long-term health (drinking, drugs, smoking, transplant, relationships)

Understands CF-related insurance, patient assistance programs, medication, and financial management

Leads all aspects of clinic visit—asks/answers questions about health status, treatment changes, insurance, etc.

Proactively identifies and reports changes in health/symptoms and alerts parent or care team

Keeps track of FEV₁ and BMI and implements recommended nutrition/treatment changes, as needed

Monitors and maintains appropriate sleep schedule

Creates and maintains proper diet and nutrition plan

Prepares for hospital visits (packing, alerting school/work, etc.)

Coordinates care with healthcare providers outside the CF center (primary care, psychologist, OB/GYN)

Person with CF is open to and ready for transfer to adult center

Schedules appointments and tracks all doctor’s appointments/clinic visits

Manages all insurance and financial aspects of CF care (ordering new treatments, coordinating refills, co-pays, etc.)

Arranges transportation to all doctor’s appointments/clinic visits

Sets up all equipment and treatments

Remembers to take and carry pills and enzymes

Remembers and takes medicines and treatments as prescribed by doctor

Cleans and disinfects equipment

Sorts and tracks medications, identifies need for refills, and informs care team/pharmacy if running low

Stores medication properly

Has a plan or system for taking medicines and treatments when on the road (on vacation, at school, at work)

Pictures and openly talks about a future for the person with CF

Able to identify warning signs and apply strategies for managing anxiety and depression

Maintains and monitors exercise plan

Educates school, family, friends, and coaches about CF

Able to speak up/advocate for the person with CF in the medical system, school, or other social settings

Makes healthy lifestyle choices (drinking, drugs, infection control, etc.)

Understands the importance of—and utilizes—a support system of peers with CF

Understands the basics of CF: what it is, how it impacts the body, etc.

Understands the importance of sleep on overall health

Understands the importance of sports, exercise, salt intake, and healthy activities

Understands importance of infection control and ways to manage the spread of germs/infection

Understands the roles and responsibilities of CF care team members

Understands the key symptoms that might trigger exacerbations or a decline in health

Knows names of medications, understands what they do, and learns about new treatments as they are introduced

Understands BMI percentile, FEV₁ scores, key aspects of CF screening, and basic tests

Understands the proper nutrition and diet plan for a person with CF and impact on lung/overall health

Understands how equipment works and how to get replacement equipment

Understands rights in school and the workplace

Understands other possible health issues linked to CF (CF-related diabetes, liver disease, sinus issues, etc.)

Understands impact of CF on body/sexual development

Understands the impact of CF on mental health (anxiety/depression)

Understands how lifestyle choices impact long-term health (drinking, drugs, smoking, transplant, relationships)

Understands CF-related insurance, patient assistance programs, medication, and financial management

Leads all aspects of clinic visit—asks/answers questions about health status, treatment changes, insurance, etc.

Proactively identifies and reports changes in health/symptoms and alerts parent or care team

Keeps track of FEV₁ and BMI and implements recommended nutrition/treatment changes, as needed

Monitors and maintains appropriate sleep schedule

Creates and maintains proper diet and nutrition plan

Prepares for hospital visits (packing, alerting school/work, etc.)

Coordinates care with healthcare providers outside the CF center (primary care, psychologist, OB/GYN)

Person with CF is open to and ready for transfer to adult center

Schedules appointments and tracks all doctor’s appointments/clinic visits

Manages all insurance and financial aspects of CF care (ordering new treatments, coordinating refills, co-pays, etc.)

Arranges transportation to all doctor’s appointments/clinic visits

Sets up all equipment and treatments

Remembers to take and carry pills and enzymes

Remembers and takes medicines and treatments as prescribed by doctor

Cleans and disinfects equipment

Sorts and tracks medications, identifies need for refills, and informs care team/pharmacy if running low

Stores medication properly

Has a plan or system for taking medicines and treatments when on the road (on vacation, at school, at work)

Pictures and openly talks about a future for the person with CF

Able to identify warning signs and apply strategies for managing anxiety and depression

Maintains and monitors exercise plan

Educates school, family, friends, and coaches about CF

Able to speak up/advocate for the person with CF in the medical system, school, or other social settings

Makes healthy lifestyle choices (drinking, drugs, infection control, etc.)

Understands the importance of—and utilizes—a support system of peers with CF

Understands the basics of CF: what it is, how it impacts the body, etc.

Understands the importance of sleep on overall health

Understands the importance of sports, exercise, salt intake, and healthy activities

Understands importance of infection control and ways to manage the spread of germs/infection

Understands the roles and responsibilities of CF care team members

Understands the key symptoms that might trigger exacerbations or a decline in health

Knows names of medications, understands what they do, and learns about new treatments as they are introduced

Understands BMI percentile, FEV₁ scores, key aspects of CF screening, and basic tests

Understands the proper nutrition and diet plan for a person with CF and impact on lung/overall health

Understands how equipment works and how to get replacement equipment

Understands rights in school and the workplace

Understands other possible health issues linked to CF (CF-related diabetes, liver disease, sinus issues, etc.)

Understands impact of CF on body/sexual development

Understands the impact of CF on mental health (anxiety/depression)

Understands how lifestyle choices impact long-term health (drinking, drugs, smoking, transplant, relationships)

Understands CF-related insurance, patient assistance programs, medication, and financial management

Leads all aspects of clinic visit—asks/answers questions about health status, treatment changes, insurance, etc.

Proactively identifies and reports changes in health/symptoms and alerts parent or care team

Keeps track of FEV₁ and BMI and implements recommended nutrition/treatment changes, as needed

Monitors and maintains appropriate sleep schedule

Creates and maintains proper diet and nutrition plan

Prepares for hospital visits (packing, alerting school/work, etc.)

Coordinates care with healthcare providers outside the CF center (primary care, psychologist, OB/GYN)

Person with CF is open to and ready for transfer to adult center

Schedules appointments and tracks all doctor’s appointments/clinic visits

Manages all insurance and financial aspects of CF care (ordering new treatments, coordinating refills, co-pays, etc.)

Arranges transportation to all doctor’s appointments/clinic visits

Sets up all equipment and treatments

Remembers to take and carry pills and enzymes

Remembers and takes medicines and treatments as prescribed by doctor

Cleans and disinfects equipment

Sorts and tracks medications, identifies need for refills, and informs care team/pharmacy if running low

Stores medication properly

Has a plan or system for taking medicines and treatments when on the road (on vacation, at school, at work)

Pictures and openly talks about a future for the person with CF

Able to identify warning signs and apply strategies for managing anxiety and depression

Maintains and monitors exercise plan

Educates school, family, friends, and coaches about CF

Able to speak up/advocate for the person with CF in the medical system, school, or other social settings

Makes healthy lifestyle choices (drinking, drugs, infection control, etc.)

Understands the importance of—and utilizes—a support system of peers with CF