For CF R.I.S.E. Portal



Tools & Resources


CF R.I.S.E. gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.



Tools & Resources


CF R.I.S.E. gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.




How will you measure progress?


Use these helpful tools to check your learning and knowledge.





CF Knowledge Assessments icon

Knowledge Assessments

Helps identify areas where the person with CF can improve their knowledge on important CF topics so a personalized educational plan can be developed


WHO

People with CF ages 10-15 and 16-25, families & care teams

WHERE

Completed at CF center

WHEN

Each quarterly CF center visit or at the CF care team’s discretion


CF Checklists icon

Responsibilities Checklists

Helps someone with CF develop appropriate self-care skills by working with their parents or support system and CF care team


WHO

People with CF ages 10-15 and 16-25 & parent(s)/support person(s)

WHERE

Completed at CF center

WHEN

Annually or at the CF care team’s discretion






CF Resources icon

Care Team Resources

Helps care team members administer CF R.I.S.E. and educate people with CF and their families about this program


WHO

Care teams

WHERE

Used in CF center

WHEN

To support program education and administration







Resources for ages 10-15

Resources for ages 16-25







CF Resources icon

Care Team Resources

Goal:

To help care team members administer CF R.I.S.E. and educate people with CF and their families about this program



Tools to Educate People with CF and Their Families about CF R.I.S.E. and Transition


Transition Tearsheet

Handout that can be used in clinic or sent home, explaining the importance of transition and providing a high-level overview of the CF R.I.S.E. program


Family Day Presentation

PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)


CF Milestones At A Glance / En Español

An overview of age-appropriate CF skills and knowledge that a family can work toward as the person with CF grows up


Milestones by Age and Stage / En Español

Provides detailed list of CF skills and knowledge, organized by age and stage, that a family can work toward as the person with CF grows up



Tools to Help You Administer CF R.I.S.E.


CF Glossary / En Español

Helpful tools for people with CF and their families which provide definitions and pronunciations of commonly used CF-related terms


Progress Report / En Español

Resource to track how a person with CF is progressing, including results history and transition goals


Program Guide

Provides a detailed description of the CF R.I.S.E. tools and tips for implementation


Action Plan

A template for care teams to complete after training to help bring structure to how, when, where, and by whom the program will be implemented









CF Resources icon

Care Team Resources

Goal:

To help care team members administer CF R.I.S.E. and educate people with CF and their families about this program



Tools to Educate People with CF and Their Families about CF R.I.S.E. and Transition


Transition Tearsheet

Handout that can be used in clinic or sent home, explaining the importance of transition and providing a high-level overview of the CF R.I.S.E. program


Family Day Presentation

PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)


CF Milestones At A Glance / En Español

An overview of age-appropriate CF skills and knowledge that a family can work toward as the person with CF grows up


Milestones by Age and Stage / En Español

Provides detailed list of CF skills and knowledge, organized by age and stage, that a family can work toward as the person with CF grows up



Tools to Help You Administer CF R.I.S.E.


CF Glossary / En Español

Helpful tools for people with CF and their families which provide definitions and pronunciations of commonly used CF-related terms


Progress Report / En Español

Resource to track how a person with CF is progressing, including results history and transition goals


Program Guide

Provides a detailed description of the CF R.I.S.E. tools and tips for implementation


Action Plan

A template for care teams to complete after training to help bring structure to how, when, where, and by whom the program will be implemented





Our Team


Those living with CF, their parents and care teams can gain valuable insight from the Transition Advisory Council (TAC), a supportive group comprised of CF experts.